To Know me is to understand me

Many of you will have read Nathan’s blog for the Disabled Children’s Partnership and recently I was on their website and was surprised, no shocked, to see that 43% of people say they don’t know anyone with a disability. This statistic was taken from a report commissioned by the charity Scope, and since reading it… Continue reading To Know me is to understand me

Looking back….

Just over a year ago I wrote this:  http://heartlog.tumblr.com/post/155440969720/im-part-of-the-first-generation-with-half-a-heart The completely unexpected response to it is what lead me to begin to take blogging seriously (well, as seriously as I can take it! Family always comes first!) In the year since Nathan has turned 21, I’ve turned 50 (!), Andre & I have celebrated our… Continue reading Looking back….

A Brand New Year to explore

Happy New Year and welcome to 2018! Yes, I know we are already 2 weeks in, but that’s me – always playing catch up! I am hoping everyone had a lovely Christmas & New Year – it seems so long ago now doesn’t it? We had a great Christmas, connecting with family and friends, and… Continue reading A Brand New Year to explore

Merry Christmas and Thank you!

Just like everyone else we have had a very busy time lately. As part of my 50th birthday celebrations (yes, we’re still celebrating!) we all went to York for the weekend. We visited the Castle Museum, Betty’s Tearoom, and the main reason for going was to visit the Christmas market. A festive market filled with… Continue reading Merry Christmas and Thank you!

Fabulous 50!

At the weekend I hit the grand old age of 50! Me! 50! I’m sure everyone who hits this milestone must stop to take stock – but for myself I feel it does have a special significance. When I was born it was very rare for a child with a single ventricle condition to survive… Continue reading Fabulous 50!